Someone needs to explain to my 3 year old how secrets are supposed to work. In theory, one person relays a message to another and only they know the contents of the message which makes it a special knowledge that you share. However if something goes haywire in the message delivery, then the delivery method certainly needs reevaluation. That’s where we are now. For the last few months, we have repeated variants of the following conversation:
“Mommy, I want to tell you a secret!”
“Oh, I love secrets! What’s the secret?”
(she goes to whisper in my ear)
“Honey, I can’t understand you when you whisper in my ear.”
“Because Mommy is deaf.”
“My ears don’t hear that way. I need to see what you say. Hey, you know what’s even better than whispering the secret in my ear?”
“You can SIGN the secret to me and hide behind your jacket so only we see!”
(she doesn’t look convinced)
We find a middle ground where she still whispers it to me but facing me so I can lipread her. She cups her hands around her mouth so it’s still secret-like, and it’s some good giggly fun. I suppose it’s one of many deaf-detours we have on the road ahead. She’ll keep me on my toes, no doubt.
It can be hard for kids to understand what our labels mean. To my daughter, the word “deaf” doesn’t mean that I can’t hear anything. I can. She knows I can hear music playing in the car, her yell, “Mommyyyyyyy!!” from behind, and most likely if she screams like a banshee from the other room. Therefore she knows my ears do possess the ability to hear to some degree. As the example of secret-gate implies, I might hear the sound of her whispering but without some visual cues, I can’t understand what she said.
Hard of hearing people (and deaf people who have some usable hearing) are in the Gray Zone. Not completely hearing and not completely deaf. And the fact is that many of us will hear the sounds of something being said, but can’t understand what is being said. This can make it harder to explain your hearing loss, and harder to feel confident in asking what you need in order to communicate with others clearly.
Over time, this is what I learned:
Figure out what you need Do you need to see someone’s mouth? Want them to talk slower? Louder? Face you? Write it down? Point?
Write a script The thing you’ll need to say to explain what you need. Short, sweet, and positive works well. Can you please face me, I’m deaf. Would you say that again? Thanks.
Get a schtick The delivery of your script. Practice it in your head, out loud, in the mirror. The more you say it and use it, the easier it gets!
Carry on For every positive communication exchange you have, consider it a bonus. You won’t solve every communication issue. And when you don’t, just move on.
The Gray Zone has its own unique set of challenges. And when you’re there it’s hard to know what you need, what to do or where you fit in. The key is carving out your own presence and embracing the best of all worlds!